Caregiver Burden, Resilience and Psychosocial Well-Being among Family Caregivers of Cancer Patients in India: A Narrative Review with Implications for Social Work Practice in Kerala

Abstract

In India, family members play an important role in caring for people living with cancer. They often take responsibility for many daily activities and provide emotional and practical support throughout the treatment process. Although caregiving can bring families closer and give relatives a sense of responsibility and purpose, it can also create several challenges. Caregivers may experience physical tiredness, emotional stress, financial difficulties, work-related problems, and less time to care for their own health.

This review explores caregiver burden, resilience, and psychosocial well-being among family caregivers of cancer patients in India, with particular attention to its relevance to social work practice in Kerala. A structured narrative approach was used to understand and organise the available literature. The selected literature included 50 references published between 1980 and 2026, covering empirical studies, review papers, and conceptual works.

The reviewed literature highlights that caregiving can affect different areas of a person's life, including physical health, emotional well-being, family relationships, social life, and financial stability. Many caregivers experience stress, anxiety, uncertainty, loss of income, and difficulties in balancing caregiving responsibilities with their personal and professional lives. Resilience and support from family, friends, and the community can help caregivers manage these challenges. However, caregivers also need proper guidance and support from health-care services.

The review also highlights the importance of Kerala-based research, particularly in community palliative care and the experiences of caregivers of people newly diagnosed with metastatic cancer. It emphasises the need for regular caregiver assessments, counselling, proper information, family support, financial guidance, respite services, and community-based assistance. Social workers can play an important role in identifying caregivers' needs, connecting them with available services, and supporting their emotional and social well-being. Overall, caregivers should be recognised not only as people who provide care to patients but also as individuals who need care, understanding, and support themselves.